posts are written by Central Pain Syndrome patients. Our posts provide a sense of connection and comfort to CPS patients as well as helpful information for doctors.
Central Pain Syndrome is caused by damage to the Central Nervous System; the brain, brainstem, or spinal cord. CPS brings a lifetime of moderate to severe pain often described as burning, aching or sharp, in addition to many other symptoms.
Ask anyone who is in the world of illness and they'll tell you the truth: it isn't easy.
I have been challenged with Central Pain Syndrome and quite frankly, it’s flipping my world upside down. It's teaching me how to listen without prejudging, share without expectations and love without concern for my own comfort.
Read MoreWhen you are constantly in pain to the point that you would rather cut off every limb because it would probably be less painful, the last thing you want to hear is, “it’s in your head, move on with your life” or, “you don’t look sick.” It can be detrimental to your mental health and well being to constantly feel that you aren’t being believed.
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